I haven’t been getting to sleep until at least 3 or 4 in the morning. It’s mostly pain. Hard to sleep when your nerves jerk you awake like that… but it’s also the pump issue. I keep going in circles. No one ever listened to me or believed me when I reported random, strange, and unusual side effects and problems. And even when the surgeon had a chance to review his work, he still didn’t catch it.
A good friend was hanging out with my husband when I came home from the official bomb-drop appointment. He was great to point out the many positives of this. There are positives, lots of them.
What I keep getting back to is just how many people were complicit in the fallacy of “everything is okay and the patient is wrong”. That’s why I’ve titled this post after one of my all time favorite books. Because that is what this has been for a year and a half – A Confederacy of Dunces.
So true. I don't know whey we as patients aren't listened too. I guess it's easy for Dr's to think they're smarter and more knowledgeable than the patient. But really, who know's our bodies better than us.
ReplyDeleteI still can't believe it took me 3 pregnancies to get the "good drugs" from my dr. to keep me from puking my guts up everyday. Maybe I should have switched dr's, maybe you should have sooner...
It's just too bad that our medical treatments are full of maybe's and half answers.
But I am glad there are positives to your situation. That's the wonderful part!